Day 30 by Diane

I thought I'd give a little update of what's life is like on "the floor."

It's rather laid back. We spend a lot of time together lol cuz neither of us really leave this room. I found it's much harder for me to leave knowing he may wake up when I'm gone, then it was to leave in the Neuro ICU. Just so you know it's not a big deal, I really like being here for Scott and if he's not a wake I sleep, read or watch TV. It's actually nice to have down time.
Like Besty has said there's not a lot to report these days. We're kind of in a holding pattern waiting for the flap to get here. It really is funny how exciting trying new foods is for me. I say this because Scott makes fun of me every time I want to order him something. When he chooses and it comes I get really excited. Come on Honey you haven't been able to eat in 3 weeks I need you to taste again!
Sad day in that the speech therapist didn't make in today. He didn't get to try chewing food. But Scott has had a little more discomfort today in his body. He's been in bed for weeks! Can you imagine the body aches you'd have. We stretch him out a bit and it helps but he wasn't really in the mood for food today. (he still gets a solid diet of fiber and protien through his feeding tube) BUT I will say this, tomorrow we're having a little Birthday celebration and I will be sneaking him cake! Come on if you mush it all together it's right there with he's puree diet!
BTW he turns 33 on Sunday!

Lots of love and gratitude for all those following our now very chill days in the hospital of waiting for a prosthetic flap to come.
Diane