Sorry yesterday got away from me and I never had a chance to post. That's the hard part of sharing the computer with the kids. When I have time to type, they want to play.
The Social Worker came and talked to us. She says Scott is still progressing well. One of the things I learned is that to stay as in-patient (at the hospital) he has to still require 2 of the 3 therapies. He still requires all 3 so we will be here another week. Very possibly more! His seizure medicine is giving him side effects and so the medical staff is working on that. It's very annoying to Scott, he just wants to get through therapy and get to out-patient (home but coming in during the week). Adding the extra 1/2 hour of PT has made his endurance go down for all therapies....DUH!
A term that is used in OT & a lot in ST is scanning. I finally asked what it means. To me it was seeing everything in view, I soon realized it must be much more with how they use this term. Scanning means: seeing what's in your visual field then interpreting it so your brain understands everything it's seeing. The brain has to relearn attention to detail. Decide what language you use to describe the info the eyes give. Decide what sequence things may happen in to get this end result or the end result you want. BASICALLY scanning is EVERYTHING you do without thinking ALL DAY LONG! Wow that's rough!
Let's see... something easy we do that is a HUGE process for Scott... I want to brush my teeth. Where would the toothbrush be? Ah sink, I need to call for help to get there. Can I stand or am I too tired so I need to sit. Help comes I say I need to sit to brush my teeth. Out of bed I go into the chair & now I'm more tired. Let's see oh yes toothbrush, where would it be? Look for the bag with all the grooming supplies. Ah toothbrush in hand. Did I pass the toothpaste in there? Ah here it is. Put some on the brush and now turn the water on. Yay it's time to brush, then spit and get mouth wash to swish. Put everything away. Where that bag again? Ah yes it's all put away. Turn to whoever helped you get here to ask for help to get back in bed.
Are you as exhausted reading this as I am from writing it? Now take that experience on something so simple multiply it by your whole day and that should give you an idea of what Scott goes through. Oh wait don't forget to add the fact that majority of what you see is blurry!
... Sorry I hope this reads as informational and not the rant that is it :) because I know I was a little annoyed with not getting a yes or no to if we're on track to be here only another week? So we continue on with our goal of getting out ASAP even if it may not be as soon as we hoped.
Thursday, June 10, 2010
Tuesday, June 8, 2010
Day 62, Diane
Today marks the 2 full months since this 1st happened and for this anniversary Scott got to walk outside for the 1st first time! He also got to get in Vader (our car) but only sit for a few minutes...how rude lol
For PT today she had a series of tests outside she had him do. Including getting into our car, stepping up & down on curbs and walking up & down hills. He did very well. After this he navigated his way back to the gym on the 4th floor. He was able to get on the treadmill and walk slowly to help get his stride longer. Today was the 1st day he did 1 & 1/2 hours of PT all at once. Scott says, "It was brutal!" Luckily it was at the end of his day so he got to sleep it off.
I missed ST today because it was Coby's family BBQ day at school and he really wanted me and Cora there. Scott say's "It was fine. There was a new person." That's all I got :) OT was just a 1/2 hour of getting ready for the day since he had a long PT. He's doing very well with getting totally ready, he only needs assistance to move around. All this helps him get closer to coming home. Another step in Scott getting better was this morning, he asked if I was going to go to work again. I laughed and said, I'm sure as soon as we're ready they'd be happy for me to help. He's says we're ready so tomorrow night I'm going to work for the 1st time in two months...wow that seems very weird. I know he can't wait for the day that he gets to go back to work for the 1st time. Funny how you never realize how much working is a part of your life until you can't do it anymore.
He's really enjoying having visitors! Tara, Besty and her family were able to come visit. Her son Henry is taking after his uncle and hates hospitals lol
For PT today she had a series of tests outside she had him do. Including getting into our car, stepping up & down on curbs and walking up & down hills. He did very well. After this he navigated his way back to the gym on the 4th floor. He was able to get on the treadmill and walk slowly to help get his stride longer. Today was the 1st day he did 1 & 1/2 hours of PT all at once. Scott says, "It was brutal!" Luckily it was at the end of his day so he got to sleep it off.
I missed ST today because it was Coby's family BBQ day at school and he really wanted me and Cora there. Scott say's "It was fine. There was a new person." That's all I got :) OT was just a 1/2 hour of getting ready for the day since he had a long PT. He's doing very well with getting totally ready, he only needs assistance to move around. All this helps him get closer to coming home. Another step in Scott getting better was this morning, he asked if I was going to go to work again. I laughed and said, I'm sure as soon as we're ready they'd be happy for me to help. He's says we're ready so tomorrow night I'm going to work for the 1st time in two months...wow that seems very weird. I know he can't wait for the day that he gets to go back to work for the 1st time. Funny how you never realize how much working is a part of your life until you can't do it anymore.
He's really enjoying having visitors! Tara, Besty and her family were able to come visit. Her son Henry is taking after his uncle and hates hospitals lol
Monday, June 7, 2010
Day 61, Diane
Scott is tube free!
This evening his J/G tube (feeding tube) was taken out of his stomach. Yay no more dealing with the tube hanging down from his stomach.
He had 1 & 1/2 hours for PT today which went really well. He's working on coordination while standing. In OT he played a game of solitaire...with real cards lol. In ST she's still working on scanning and making sure his able to process well. She had a bunch of pictures of house, yard, & garage tools and then asked questions about them. Finally something fun for Scott to do. The therapists have all been really good at finding fun ways for him to get through the boring parts of rehab. They really have been great!
It's all just one step closer to getting out of this place, even if it's just for an hour. We're hoping soon he'll be able to add an outing as part of therapy...maybe DQ for a tasty treat... it's just next door.
This evening his J/G tube (feeding tube) was taken out of his stomach. Yay no more dealing with the tube hanging down from his stomach.
He had 1 & 1/2 hours for PT today which went really well. He's working on coordination while standing. In OT he played a game of solitaire...with real cards lol. In ST she's still working on scanning and making sure his able to process well. She had a bunch of pictures of house, yard, & garage tools and then asked questions about them. Finally something fun for Scott to do. The therapists have all been really good at finding fun ways for him to get through the boring parts of rehab. They really have been great!
It's all just one step closer to getting out of this place, even if it's just for an hour. We're hoping soon he'll be able to add an outing as part of therapy...maybe DQ for a tasty treat... it's just next door.
Sunday, June 6, 2010
Day 60, Diane
Yesterday was a nice and relaxed day. He had an hour of PT & then spent a lot of time resting from the weeks work. Coby and I spent some time just chillin while he slept and Cora was at a birthday party close by. It was lots of fun... I love watching iCarly with the Coby!
I actually attended the Saturday morning class I teach at the YMCA and well I now sympathize with Scott when he's legs shake so bad he can't do any more. It's been well over a year since I've pushed myself to the I can't squat any lower because my legs just wont do it!
He's been able to rest a lot today as well with not having any therapies on Sundays. This is a good thing because he is scheduled to meet with a GI doctor about his feeding tube. It has been in over 6 weeks and now the scare tissue is built up enough to take it out. We do not know for sure if it will come out however. He is new to this hospital and the doctor will have to meet with him take a look at it and then they will access if it comes out tomorrow or another day. That's fine he's scheduled for 1 & 1/2 hours of PT tomorrow along with OT & ST. WoW tomorrow will be a big day for him. I will be sure to post the happenings of the day tomorrow night .
I actually attended the Saturday morning class I teach at the YMCA and well I now sympathize with Scott when he's legs shake so bad he can't do any more. It's been well over a year since I've pushed myself to the I can't squat any lower because my legs just wont do it!
He's been able to rest a lot today as well with not having any therapies on Sundays. This is a good thing because he is scheduled to meet with a GI doctor about his feeding tube. It has been in over 6 weeks and now the scare tissue is built up enough to take it out. We do not know for sure if it will come out however. He is new to this hospital and the doctor will have to meet with him take a look at it and then they will access if it comes out tomorrow or another day. That's fine he's scheduled for 1 & 1/2 hours of PT tomorrow along with OT & ST. WoW tomorrow will be a big day for him. I will be sure to post the happenings of the day tomorrow night .
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