I have to post this morning because I want to shout from the roof tops and well there's enough people reading this that it's like I am....
I walked in this morning to Scott having his eyes opened!
Around midnight last night he started doing better. He follows commands and keeps his eyes opened a lot more. He is even moving his hand and feet on his own. A mix of all they did yesterday for his brain stem worked.
Look for Besty's post later after Med rounds to get all the info on how he is and what the plan for the day is.
Yay! Two steps back make the one step forward feel SUPER AMAZING!
Diane
Showing posts with label Diane's Posts. Show all posts
Showing posts with label Diane's Posts. Show all posts
Thursday, April 22, 2010
Sunday, April 18, 2010
The many thoughts of Diane
Ok so first which is really last.... I got to the end of rereading this and realized I want this part of the story 1st not last lol
I can not begin to describe the Awesomeness of this Hospital! They truly are here for the whole thing. I know Scott is in the best care because every single hospital worker is great! The lady who cleans, asked me how my husband is doing when I was in the hall! She remembered me enough that she could ask even when I was not in the room with him! From Surgeons to Doctors to Nurses to Respiratory Monitors to Ultrasound Techs to the people at the Desk (I know how important they really are cuz I'm one) all who have been many different people. They are all great at taking care of Scott first and yet me as well. From Claudia the Social worker to Andrea the Care Manager to Mark the Chaplin who are all here for me and the family. Wow what a huge relief knowing I have people in the Hospital for me
It's Sunday afternoon & I'm back in 'the room'. I was able to spend the last 24 hours with the kids. We went to spend the night with my grandma in Arlington (where I grew up/Scott & I lived when 1st married, for any who don't know) I took the kids to see 'Diary of a Wimpy Kid' downtown with g-ma, Christina (my older sister) and her boys. It was so great to have them with us. Tanner was a great distraction for Coby. Going to the movies is a very usual thing for our family to do. We love movies and anytime we're in A-Town & Norma's playing a movie we've considered seeing, we go. The prices are amazing, the candy selection is huge and well I worked there all through High School, how can we not go. Cora was very cuddly and had lots of comments on the movie, which was great it kept me from thinking about Scott and how he should be there with us. I did have a few of these thoughts none the less :( It was great to sit & chill with the kids .Then I was able to sleep in between them last night which was a treat in it's self.
We were able to go to church this morning before heading to Besty's for the kids swap. It was really nice to do something normal. Coby sang the songs so well today, which is something Scott has been working with him on during church at home. It was so amazing to hear his voice and know he was reading the words as he sang all because his dad knew it was important. (Coby sticks pretty close to Scott and Cora sticks pretty close to me during sacrament meeting) I had them both laying on my lap most of the meeting playing with their hair. What a sweet experience to have them close & quit while hearing about how keeping the commandments of God brings blessing and makes us happy.
I agree! I'm sure many people have been asking "How could this happen to Scott?" "Why him" "He doesn't deserve this!"
All I can say is, I see the blessings & the answers to prayers that this has brought in our lives already! It's too difficult and way to personal for me to share, but know that yes this experience has answered some of his specific prayers... just not in a way he or I would have expected!
Scott and I were planning to go to the temple this month and as we were in the ambulance driving over my mind was racing from one thought & prayer to the next. I could not help but pray as hard as I could for the Lord to allow me to keep Scott. I kept thinking what will I do if we loose him, and automatically thought I will not! I can't raise our children without him. They have to learn things from him that I can't teach them. My prayers turned to the Lord and I remembered that we were planning to go soon. I automatically thought, sweet I will be able to go to the temple more often with being so close to Bellevue. As we got closer to it, if you don't know you can see the Latter Day Saints Temple from I-90 really well at night, I got anxious to see it. I needed it's calming feeling. Once I saw the temple I got the overwhelming feeling to go ASAP. So I made a plan to go Saturday morning. As we have learned in this 'room' time flies very fast in here. I was finally ready to go & he was agitated when I went in for a look before I left. I started thinking, it's more important for me to stay here with him in this state. I can go another time, even later today. But I got the distinct feeling that I needed to go now. So I turned to mom & said get me to the temple. We were able to go and have a wonderful experience there. But once I was ready to go, I was ready to go and panic set in. For the 1st time ever I got out of the temple as fast as I could for an update. I'm sure Besty was a bit shocked to hear my voice with such panic as I asked how things were. They were as good as could be expected. Ah finally back in 'the room' with Honey. I know I did what the Lord wanted and I believe Scott was blessed by my obedience to the commandments.
As we all know the week was full of ups and downs. I remember going to bed on Wednesday thinking it is going to be so long before things turn around and he has good days. Then Thursday hits. It was a very scary morning for me. I heard the word LP and thought about the show House. It always seems like a huge deal if you're to the point of an LP. I automatically called my mom and told her she had to go to the temple as soon as she could that morning! (she is in Utah visiting my sister Caroline. She has had the tickets to go for months & I told her I needed to to still go, mainly it was so Care had some family. I know always looking out for others. But I also needed my mom where she could be free to go as I needed her to.) She told me the night before that Thursday was sitting to work on genealogy day. I heard LP & thought sorry moma genealogy day is turning into temple day. When I told I needed her to go she had not hesitation she walked the mile or so to get there and actually spent most of the day serving the Lord. Later she told me, "I know the Lord will bless Scott to make it through this experience." I can't express the gratitude I have for my Heavenly Father for blessing me with the one thing I need at this time... My Loving Husband to stay with me!
I know that the time of it was a blessing as well. I can't express how many things have fallen into place where the person I needed hep from was able to help so easily & yet if this happened even a week later that would have been much more difficult.
I'm beside myself to think that I have also been blessed by so many people in our life with help, support and prayer. I can't express the feeling in my heart for each of you who have supported our family in this trail. To all those who follow this blog. Wow I am touched that you care enough to see how we're doing.
I have a few thoughts I'd like to share.... I know I know after that book, she still has more to say? Why of course. Ask anyone who has had the pleasure of reading an incident report I've written at the Y how much she can say :)
I'm not sure how many know, but I had to stay in 'the room' when they did the LP. I was so scared. They had to sit him up because he was not stable enough for laying down. It was not an easy thing. Almost 200lbs of sedated weight, it took 4 nurses to get him up. Oh I say I had to stay because, well I had a choice to be in the room and well it was a do you stay & know what was happening or sit in the waiting room with no idea. I had to know, so I had to stay. But staying was not easy. By the way a huge Thank You to Dr. Schubert the Neuro Surgeon/Fellow that did the procedure. He took the time to come tell me it looked much worse than it was ans he took lots of time to explain the whole thing to me afterwards.
I had a little church guide book in my bag that I had to read to keep me distracted. I came across a few phrase that really helped me. I know that although our currant trial is way more obvious than most people have, I'm not oblivious to others having struggles in their lives. And if you're like me they feel huge...until you find yourself sitting in the hospital. So here they are. I know that many who read this do not believe exactly as we do, but I hope that these thought bring you comfort, because it is all I can do after all the many things you have done for us. Even if all you have done is read our postings, you have been a strength to our family.
These are all from 'True to the Faith, a gospel reference" for the Church of Jesus Christ of Latter Day Saints. Wow my English teachers over the years should be happy, I sited a source on an Internet blog lol
Thoughts:
-Adversity will vary, one response should always be constant, your trust in Heavenly Father and Jesus Christ.
-You do what They require even when you desire something else.
- He may allow you to wait so you can continue to learn and grow.
-Find comfort...the Savior understands your trails perfectly. He has experienced your pain, He knows how to help you.
-Your success and happiness, both now and in the eternities, depends largely on your responses to the difficulties of life.
-You may simply need to be patient and faithful.
If you made it to the end of this posting, I congratulate you with my love and gratitude! Diane
I can not begin to describe the Awesomeness of this Hospital! They truly are here for the whole thing. I know Scott is in the best care because every single hospital worker is great! The lady who cleans, asked me how my husband is doing when I was in the hall! She remembered me enough that she could ask even when I was not in the room with him! From Surgeons to Doctors to Nurses to Respiratory Monitors to Ultrasound Techs to the people at the Desk (I know how important they really are cuz I'm one) all who have been many different people. They are all great at taking care of Scott first and yet me as well. From Claudia the Social worker to Andrea the Care Manager to Mark the Chaplin who are all here for me and the family. Wow what a huge relief knowing I have people in the Hospital for me
It's Sunday afternoon & I'm back in 'the room'. I was able to spend the last 24 hours with the kids. We went to spend the night with my grandma in Arlington (where I grew up/Scott & I lived when 1st married, for any who don't know) I took the kids to see 'Diary of a Wimpy Kid' downtown with g-ma, Christina (my older sister) and her boys. It was so great to have them with us. Tanner was a great distraction for Coby. Going to the movies is a very usual thing for our family to do. We love movies and anytime we're in A-Town & Norma's playing a movie we've considered seeing, we go. The prices are amazing, the candy selection is huge and well I worked there all through High School, how can we not go. Cora was very cuddly and had lots of comments on the movie, which was great it kept me from thinking about Scott and how he should be there with us. I did have a few of these thoughts none the less :( It was great to sit & chill with the kids .Then I was able to sleep in between them last night which was a treat in it's self.
We were able to go to church this morning before heading to Besty's for the kids swap. It was really nice to do something normal. Coby sang the songs so well today, which is something Scott has been working with him on during church at home. It was so amazing to hear his voice and know he was reading the words as he sang all because his dad knew it was important. (Coby sticks pretty close to Scott and Cora sticks pretty close to me during sacrament meeting) I had them both laying on my lap most of the meeting playing with their hair. What a sweet experience to have them close & quit while hearing about how keeping the commandments of God brings blessing and makes us happy.
I agree! I'm sure many people have been asking "How could this happen to Scott?" "Why him" "He doesn't deserve this!"
All I can say is, I see the blessings & the answers to prayers that this has brought in our lives already! It's too difficult and way to personal for me to share, but know that yes this experience has answered some of his specific prayers... just not in a way he or I would have expected!
Scott and I were planning to go to the temple this month and as we were in the ambulance driving over my mind was racing from one thought & prayer to the next. I could not help but pray as hard as I could for the Lord to allow me to keep Scott. I kept thinking what will I do if we loose him, and automatically thought I will not! I can't raise our children without him. They have to learn things from him that I can't teach them. My prayers turned to the Lord and I remembered that we were planning to go soon. I automatically thought, sweet I will be able to go to the temple more often with being so close to Bellevue. As we got closer to it, if you don't know you can see the Latter Day Saints Temple from I-90 really well at night, I got anxious to see it. I needed it's calming feeling. Once I saw the temple I got the overwhelming feeling to go ASAP. So I made a plan to go Saturday morning. As we have learned in this 'room' time flies very fast in here. I was finally ready to go & he was agitated when I went in for a look before I left. I started thinking, it's more important for me to stay here with him in this state. I can go another time, even later today. But I got the distinct feeling that I needed to go now. So I turned to mom & said get me to the temple. We were able to go and have a wonderful experience there. But once I was ready to go, I was ready to go and panic set in. For the 1st time ever I got out of the temple as fast as I could for an update. I'm sure Besty was a bit shocked to hear my voice with such panic as I asked how things were. They were as good as could be expected. Ah finally back in 'the room' with Honey. I know I did what the Lord wanted and I believe Scott was blessed by my obedience to the commandments.
As we all know the week was full of ups and downs. I remember going to bed on Wednesday thinking it is going to be so long before things turn around and he has good days. Then Thursday hits. It was a very scary morning for me. I heard the word LP and thought about the show House. It always seems like a huge deal if you're to the point of an LP. I automatically called my mom and told her she had to go to the temple as soon as she could that morning! (she is in Utah visiting my sister Caroline. She has had the tickets to go for months & I told her I needed to to still go, mainly it was so Care had some family. I know always looking out for others. But I also needed my mom where she could be free to go as I needed her to.) She told me the night before that Thursday was sitting to work on genealogy day. I heard LP & thought sorry moma genealogy day is turning into temple day. When I told I needed her to go she had not hesitation she walked the mile or so to get there and actually spent most of the day serving the Lord. Later she told me, "I know the Lord will bless Scott to make it through this experience." I can't express the gratitude I have for my Heavenly Father for blessing me with the one thing I need at this time... My Loving Husband to stay with me!
I know that the time of it was a blessing as well. I can't express how many things have fallen into place where the person I needed hep from was able to help so easily & yet if this happened even a week later that would have been much more difficult.
I'm beside myself to think that I have also been blessed by so many people in our life with help, support and prayer. I can't express the feeling in my heart for each of you who have supported our family in this trail. To all those who follow this blog. Wow I am touched that you care enough to see how we're doing.
I have a few thoughts I'd like to share.... I know I know after that book, she still has more to say? Why of course. Ask anyone who has had the pleasure of reading an incident report I've written at the Y how much she can say :)
I'm not sure how many know, but I had to stay in 'the room' when they did the LP. I was so scared. They had to sit him up because he was not stable enough for laying down. It was not an easy thing. Almost 200lbs of sedated weight, it took 4 nurses to get him up. Oh I say I had to stay because, well I had a choice to be in the room and well it was a do you stay & know what was happening or sit in the waiting room with no idea. I had to know, so I had to stay. But staying was not easy. By the way a huge Thank You to Dr. Schubert the Neuro Surgeon/Fellow that did the procedure. He took the time to come tell me it looked much worse than it was ans he took lots of time to explain the whole thing to me afterwards.
I had a little church guide book in my bag that I had to read to keep me distracted. I came across a few phrase that really helped me. I know that although our currant trial is way more obvious than most people have, I'm not oblivious to others having struggles in their lives. And if you're like me they feel huge...until you find yourself sitting in the hospital. So here they are. I know that many who read this do not believe exactly as we do, but I hope that these thought bring you comfort, because it is all I can do after all the many things you have done for us. Even if all you have done is read our postings, you have been a strength to our family.
These are all from 'True to the Faith, a gospel reference" for the Church of Jesus Christ of Latter Day Saints. Wow my English teachers over the years should be happy, I sited a source on an Internet blog lol
Thoughts:
-Adversity will vary, one response should always be constant, your trust in Heavenly Father and Jesus Christ.
-You do what They require even when you desire something else.
- He may allow you to wait so you can continue to learn and grow.
-Find comfort...the Savior understands your trails perfectly. He has experienced your pain, He knows how to help you.
-Your success and happiness, both now and in the eternities, depends largely on your responses to the difficulties of life.
-You may simply need to be patient and faithful.
If you made it to the end of this posting, I congratulate you with my love and gratitude! Diane
Thursday, April 15, 2010
clarification from last night
He does still have infections in his lungs. They are pumping antibiotics in him to treat the infections, there are a few different ones. What they are thinking is that the fever is not related to these infections.
Ops getting medical info is not always easy to explain later. Diane
Ops getting medical info is not always easy to explain later. Diane
Wednesday, April 14, 2010
Thank You's, Diane
I will randomly be adding to the blog. At this point I have an extreme amount of "stuff" in my head that I want to share & will probably forget most of it. So don't be surprised at the randomness of what I post. And even more so that I probably will forget many, many, many thank yous that I owe. (the following is in no order, I hope everyone knows that I)
My beautiful Mother-in-law! Thank you for being me the kids! I never wanted grandma to have to be me but I am so grateful you can keep their life as normal & be grandma while having through the weeks that are ahead for all of us. I you probably know but I will make sure to tell you, Scott is going to be so grateful that you were able to keep his kids happy, healthy & everything else you will be doing while he & I can not. He & I would have it no other way!!!! I want anyone following this to know that I will never be able to express the many wonderful emotions this has & will brings for us.
Wenatchee Trip: The most Argh 30 hours of my life! Anyone who saw me knows I only made it through that short period of time by thinking/doing one task at a time & by Caroline (my sister) helping me stay on task on step at a time...Thank you for flying so quickly to see us & for knowing you needed to stay longer for me & so much more! Thank you Betsy & Suz (Scott's sister & mine) for being Tara and me when we could not! We both want to stay close by Scott's side...Dang it I want to be in a chair next to him the whole time saying you can do it Honey! I want to cheer him on like I do in my classes but my voice changed from calming him down to making him want to get up a few days ago so I just stand moving his fingers & toes for him cheering in my mind. (ops random) Thank you to Jodi for being me for my house, car & classes and So Much More! Thank You to Everyone who has helped us there in Wenatchee. Everyone who I randomly got to see, talk to on the phone or whatever else. I could not have made it through leaving Scott's side any other way! Thank You mommy for getting me to Wenatchee. I know the Lord blessed the situation to have everything work out perfectly for each family member. Finally to Hillary for the amazing care package! I needed a way to keep my body healthy while here & she provided with yummy healthy snacks, drinks and of course weights/resistant tubing so I can get a little strength training in even at the hospital. I must say carrying the 30 lb basket up to my room and having a snack after was an experience after so many days of no exercise :) Oh yes & Aaron thank you for contributing to the basket, I know one thing that came form you super tasty toffee covered peanuts, right? Did I check those jars out for you back in the day when I worked the peanut window (sorry YMCA/work joke if you don't know. Days of working seem so long ago & yet it feel like this happened to Scott maybe 3 day ago)
I must thank Besty for this blog. WOW what a huge relief to know that anyone who wants to know how Scott is doing can find out when it works for them...and I don't have to try to get back to a missed call. What an extreme relief. When I find out how may people are following this I realize the extent of what she has done for me...it is over whelming to say the least!!!
I just read all the happenings here I was behind on. I love to read the comments after the posts. wow it's going to take Scott forever to read all the posts & comments when he's ready...yeah for that :) I'm blown away by the love & support we have received by so many people. I was telling Hillary yesterday that the "you find out who your friends are" phrase from some country song keeps going through my head. Yes to all those who have attended one of my cycling class, I listen to country music too. Shocking right? (see random) We have always known we have a close group of friends, but the support I have received and the willingness to serve from SO MANY helps me to realized that yes we have a close group but it is much larger than we ever knew! I'm not sure if any of you know how much this will mean to Scott when he wakes to find what I'm am learning each day here. I can't put it into words, but I know he will be.....Ah I can't explain it... AMAZED, UPLIFTED, STRENGTHENED BEYOND MEASURE!!!!
Please if you read and have a thought keep them coming, through posts or even the texts. I get them all even if I don't reply, they stregthen me beyond measure.
That's all for now. darn I don't have anyone to proof this hopefully it all makes sense. Diane:)
My beautiful Mother-in-law! Thank you for being me the kids! I never wanted grandma to have to be me but I am so grateful you can keep their life as normal & be grandma while having through the weeks that are ahead for all of us. I you probably know but I will make sure to tell you, Scott is going to be so grateful that you were able to keep his kids happy, healthy & everything else you will be doing while he & I can not. He & I would have it no other way!!!! I want anyone following this to know that I will never be able to express the many wonderful emotions this has & will brings for us.
Wenatchee Trip: The most Argh 30 hours of my life! Anyone who saw me knows I only made it through that short period of time by thinking/doing one task at a time & by Caroline (my sister) helping me stay on task on step at a time...Thank you for flying so quickly to see us & for knowing you needed to stay longer for me & so much more! Thank you Betsy & Suz (Scott's sister & mine) for being Tara and me when we could not! We both want to stay close by Scott's side...Dang it I want to be in a chair next to him the whole time saying you can do it Honey! I want to cheer him on like I do in my classes but my voice changed from calming him down to making him want to get up a few days ago so I just stand moving his fingers & toes for him cheering in my mind. (ops random) Thank you to Jodi for being me for my house, car & classes and So Much More! Thank You to Everyone who has helped us there in Wenatchee. Everyone who I randomly got to see, talk to on the phone or whatever else. I could not have made it through leaving Scott's side any other way! Thank You mommy for getting me to Wenatchee. I know the Lord blessed the situation to have everything work out perfectly for each family member. Finally to Hillary for the amazing care package! I needed a way to keep my body healthy while here & she provided with yummy healthy snacks, drinks and of course weights/resistant tubing so I can get a little strength training in even at the hospital. I must say carrying the 30 lb basket up to my room and having a snack after was an experience after so many days of no exercise :) Oh yes & Aaron thank you for contributing to the basket, I know one thing that came form you super tasty toffee covered peanuts, right? Did I check those jars out for you back in the day when I worked the peanut window (sorry YMCA/work joke if you don't know. Days of working seem so long ago & yet it feel like this happened to Scott maybe 3 day ago)
I must thank Besty for this blog. WOW what a huge relief to know that anyone who wants to know how Scott is doing can find out when it works for them...and I don't have to try to get back to a missed call. What an extreme relief. When I find out how may people are following this I realize the extent of what she has done for me...it is over whelming to say the least!!!
I just read all the happenings here I was behind on. I love to read the comments after the posts. wow it's going to take Scott forever to read all the posts & comments when he's ready...yeah for that :) I'm blown away by the love & support we have received by so many people. I was telling Hillary yesterday that the "you find out who your friends are" phrase from some country song keeps going through my head. Yes to all those who have attended one of my cycling class, I listen to country music too. Shocking right? (see random) We have always known we have a close group of friends, but the support I have received and the willingness to serve from SO MANY helps me to realized that yes we have a close group but it is much larger than we ever knew! I'm not sure if any of you know how much this will mean to Scott when he wakes to find what I'm am learning each day here. I can't put it into words, but I know he will be.....Ah I can't explain it... AMAZED, UPLIFTED, STRENGTHENED BEYOND MEASURE!!!!
Please if you read and have a thought keep them coming, through posts or even the texts. I get them all even if I don't reply, they stregthen me beyond measure.
That's all for now. darn I don't have anyone to proof this hopefully it all makes sense. Diane:)
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